Patients need to be in charge of their own data, and that means determining how to use and potentially profit from those data - We owe this to patients.
Ravi B. Parikh, MD - Coalition to Transform Advanced Care
Consent-Driven Pipelines at Scale
Build community-driven data pipelines to replace one-off outreach - Condition communities opt-in together accelerating recruitment 3×
Community-Validated Eligibility
Condition communities validate eligibility logic - real-world feedback improves computable criteria and reduces false exclusions to cut screen failures by 40%
Retention by Design
Cut trial attrition by 30% - retention improves when patients co-design trial experiences - community insights inform scheduling, burden scoring, and caregiver support
Hybrid Access with Community Infrastructure
Bring trials to patients, not the reverse - Communities help map access barriers - Geo-mapped burden scoring improves site selection and hybrid trial feasibility
Build Trust + Regulatory Confidence
De-identifiable community data sharing + consent and compensation models build trust - and meet CT.gov, CTIS, and DAP requirements
